Neonatal palliative care: clinical and epidemiological profile of patients treated at a referral hospital

Julianna Rodrigues Beltrão; Andreia Christine Bonotto Farias Franco; Larissa Madruga Monteiro; Janaína  Ferreira Percegona; Marina Faria Negrão; Andressa  Mees dos Santos

doi:10.59679/LAPC20240061

Autores

Julianna Rodrigues Beltrão Pontifícia Universidade Católica do Paraná - Curitiba, Paraná, Brazil https://orcid.org/0000-0001-6417-2125
Andreia Christine Bonotto Farias Franco Hospital Universitário Evangélico Mackenzie https://orcid.org/0000-0002-5302-292X
Larissa Madruga Monteiro Hospital Universitário Evangélico Mackenzie, Cuidados Paliativos Pediátricos - Curitiba, Paraná, Brazil. https://orcid.org/0009-0002-0662-8096
Janaína Ferreira Percegona Hospital Universitário Evangélico Mackenzie, Cuidados Paliativos Pediátricos - Curitiba, Paraná, Brazil. https://orcid.org/0000-0002-9471-3778
Marina Faria Negrão Pontifícia Universidade Católica do Paraná - Curitiba, Paraná, Brazil. https://orcid.org/0009-0000-8010-9900
Andressa Mees dos Santos Hospital Universitário Evangélico Mackenzie, Cuidados Paliativos Pediátricos - Curitiba, Paraná, Brazil. https://orcid.org/0009-0007-1840-1805

DOI:

https://doi.org/10.59679/LAPC20240061

Palavras-chave:

Palliative Care, Intensive Care Units, Neonatal, Perinatal Death, Congenital Abnormalities, Brazil

Resumo

Introduction: Neonatal palliative care offers improvement in quality of life and relief from suffering for newborns and their families in the face of diagnoses that lead to increased morbidity and mortality.
Objective: To describe the profile of the population cared for by the Pediatric Palliative Care (PPC) service who were admitted to the Neonatal Intensive Care Unit (NICU) of a referral hospital in Curitiba, PR, Brazil.
Method: This is a retrospective, cross-sectional and descriptive study, based on the analysis of the medical records of patients seen by the service between September 2020 and June 2023. The data was analyzed using descriptive statistics.
Results: During the selected period, 303 patients were seen, the majority of whom were male (50.8%). The main clinical conditions involved prematurity (35.3%) and diseases of the nervous system (14.5%). Most of the diagnoses were “conditions for which a cure is possible but may fail.” In view of this, it was agreed with family members and staff to limit support for 11.6% of the neonates. Regarding outcomes, 17.6% of the patients died during their stay in the NICU, the remaining patients were medically discharged from the NICU and 9.8% were referred to the pediatric ward before discharge so that the mothers had the opportunity to be trained in the care of their babies.
Conclusion: The NICU houses newborns with complex conditions who benefit from the practice of PPC. Therefore, recognizing the profile of these patients allows the team to better direct their actions and, consequently, provide better support for the newborn and their family.

Referências

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Neonatal palliative care

clinical and epidemiological profile of patients treated at a referral hospital

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